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Fetal Alcohol Syndrome
An individual’s place, and
success, in society is almost entirely determined by neurological
functioning.
A neurologically injured child is unable to
meet the expectations of parents, family, peers, school, career and can
endure a lifetime of failures. The largest cause of neurological damage in
children is prenatal exposure to alcohol. These children grow up to become
adults. Often the neurological damage goes undiagnosed, but not
unpunished.
They can become the forgotten kids - the children
that have nearly invisible disabilities. They have their arms and legs,
can see and hear, run, play, etc., but most have never been to a birthday
party or a sleepover.. they are last to be chosen to play, and first to be
blamed. Their illnesses aren't fatal, but a small part of their hearts and
souls die with every rejection. Their behaviors may seem odd or
unpredictable to themselves as much as society.
Fetal Alcohol Syndrome (FAS), Fetal
Alcohol Effects (FAE), Alcohol Related Neurodevelopmental Disorders
(ARND), Static Encephalopathy (alcohol exposed) (SE) or
Alcohol Related Birth
Defects(ARBD) are all names for a spectrum of disorders caused
when a pregnant woman consumes alcohol.
More than 10% of children have been exposed to
high levels of alcohol in utero. All will suffer varying degrees of
effects, ranging from mild learning disabilities to major
physical, mental and
intellectual impairment. It takes very little alcohol to cause serious
damage. Research has shown that even a single exposure to high levels of
alcohol can cause significant brain damage in the
infant.

Six week-old brains
Alcohol is toxic at all concentrations.
Alcohol damage to the fetus occurs over a wide continuum. Damage varies
due to volume ingested, timing during pregnancy, peak blood alcohol
levels, genetics and environmental factors.
FAS/E is a lifetime disability. It is
not curable. A child does not "grow out of it". However, early diagnosis
and intensive, and appropriate, intervention can make an enormous
difference in the prognosis for the child. There is a small window of
opportunity, up to about age 10 or 12, to achieve the greatest potential
for an alcohol affected child. That period is when the greatest
development of fixed neural pathways occurs. That is when alternative
"coping" pathways are most easily built as "work-arounds" to damaged areas
of the brain. Time is of the essence.
In utero alcohol damage
can include:
| Loss of intellectual
functioning (IQ) |
Mild to severe vision
problems |
Higher than normal to
dangerously high pain tolerance |
| Severe loss of intellectual
potential |
Mental Retardation |
Dyslexia |
| Serious maxilo-facial
deformities |
Dental
abnormalities |
Cleft palate |
| Immune system
malfunctioning |
Behavioral
problems |
Attention deficit
disorders |
| ADD/ADHD |
Extreme
impulsiveness |
Poor judgement |
| Little or no retained
memory |
Deafness |
Little or no capacity for
moral judgement |
| Little or no capacity for
interpersonal empathy |
Sociopathic
behaviour |
Epilepsy |
| Tremors |
Cerebral palsy |
Renal (liver)
failure |
| Asthma |
Complex seizure
disorder |
Developmental speech and
language disorder |
| Developmental
delay |
Height and weight
deficiencies |
Tight
hamstrings |
| Cognitive
perseveration |
Echolalia |
Autistic traits |
| Rigidity |
Sleep disorder |
Developmental coordination
disorder |
| Adaptive esotropia |
Tourette's traits |
Central auditory processing
disorder |
| Night terrors |
Precocious puberty
|
Social problems |
| Depression |
Reactive outbursts |
Suicide |
| Heart defects |
Heart failure |
Death |
The brain's Frontal Lobes control
judgement, inhibition, concentration, self-control, conscience,
personality and emotional traits as well as cognition and memory, motor
speech and movement skills.
The Left Hemisphere deals with language
based memory - logical interpretation of language, mathematics,
abstraction and reasoning, facts and rules (such as safety and social).
The Right Hemisphere deals with
holistic functioning - processing of images, sound, touch, for a
"holistic" picture. Memory here is visual, auditory and spatial. So, the
Left side is logic, facts, rules. The Right side is sensory input and
reactive.
The Corpus Callosum connects right and
left sides to allow communication between the hemispheres. The Right side
senses input, checks with the Left side to see if there are rules to deal
with this pattern of input, integrates the stored information and reacts
in a modified way. Damage to any of these systems causes very poor,
inappropriate response. For example, if the Corpus Callosum cannot access
the appropriate information, quickly enough (or at all), then reaction to
stimulae will be completely spontaneous, impulsive, based solely on
instinct, (if any). Alcohol seriously damages the physical structures,
"wiring" and brain chemistry.
FAS (Fetal Alcohol
Syndrome) individuals may have a distinctive physical appearance and
lower IQs, but have lower crime and addiction rates than FAE individuals
as they get earlier diagnosis and can be better protected by society and
their parents.
While FAE (Fetal Alcohol Effects) individuals
may lack the outward physical appearance of alcohol damage, and generally
have higher IQ's, the internal damage to the brain and other organs can be
just as serious as full FAS. IQ measures convergent fact based thinking.
Life skills require divergent adaptive thinking that in FAE individuals
will be substantially lower than their IQ. However, because FAE
individuals "look normal" they are expected to perform normally. These
issues lead to secondary disabilities. Primary disabilities are those the
child is born with. Secondary disabilities are those that develop as a
result of failure to properly deal with the primary
disabilities.
"The girls get knocked up and the boys get
locked up." They are followers, easily misled, with little or no
appreciation of consequences. Without intervention, many ride the justice
system merry-go-round or become "homeless street
people". They are required to compete in society but have
been denied the tools to do so.
Of FAE individuals between the ages of 12
and 51:
- 95% will have mental health problems;
- 60% will have "disrupted school
experience";
- 60% will experience trouble with the
law;
- 55% will be confined in prison, drug or
alcohol treatment centre or mental institution;
- 52% will exhibit inappropriate sexual
behaviour.
Of FAE individuals between 21 and
51:
- more than 50% of males and 70% of females
will have alcohol and drug problems;
- 82% will not be able to live
independently;
- 70% will have problems with employment
Early diagnosis can help prevent
secondary disabilities such as mental health problems, dropping out of
school, trouble with the law and substance abuse. After diagnosis,
parents often find that their ability to cope with the child's behavior
changes dramatically when they understand that the problems are most
likely based on organic brain damage, rather than the child's choice to be
inattentive or uncooperative.
Costs of
FAS/E
On average, each FAS/E individual costs the
taxpayer more than $3 million in his or her lifetime
(health problems, special education, psychotherapy and counseling,
welfare, crime, and the justice system).
More than 60% of prisoners
are likely affected by alcohol in utero. It costs approximately
$120,000/year to "house" a Young Offender and
$82,000 for an adult offender. Punishment does not
cure neurological damage.
Add on:
- the FAS/E individual's own lifetime loss of
income;
- the high costs to the families (foster,
adoptive or biological) who raise and care for FAS/E children and
adults;
- the lost income of a parent who must care
for the exceptionally high needs of an FAS/E child;
- the costs to families whose FAS/E child is
permanently dependent upon them;
- the costs of legal services for defending
their child in the courts;
- the cost of stress caused divorce, etc.
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